I always liked the song Cecilia by Simon and Garfunkel but that was not the reason I chose the name for Cecilia.
Through research I found that the song is interpreted by many to be about a lover but another interpretation is that it is more about the frustration of a songwriter's inspiration. Saint Cecilia is the Patron Saint of Musicians and Simon mentions her again in the song "The Coast" from the Album The Rhythm of the Saints: "A family of musicians took shelter for the night in the little harbor church of St. Cecilia."
Paul Simon also had a Black Lab named Cecilia and Art Garfunkel had reported that Simon never dated anyone named Cecilia and the song was probably about his dog.
I just like the song so I added it to this blog.
Tuesday, September 23, 2008
Monday, September 22, 2008
99% Suvival Rate Would Be Nice - A Goal...
We have had too many precious babies fight hard against congenital diaphragmatic hernia and still loose the battle - not the war. The war is still going on with their parents, grandparents, families and friends. There is a need to have more effective treatment for these babes and for lung function to be improved so they can survive.
When Cecilia was born in 1999, they had little they could do with the number one killer to these babies - pulmonary hypertension. A few years later there were more drugs out there that could be given to these babes to get them to the point of recovering and those lungs to the point that there may be little need for the drugs or none. Some children may still need the medications - some do not. The point is - it is out there now to help. We need more, so much more.
It just doesn't seem to be enough out there.
I am not asking for a "cure" - I have seen long enough and researched congenital diaphragmatic hernia long enough to know it is a naturally occurring birth defect. I would like to see the survival rate at 99% - nothing in life is 100%. Next is to have more out there for families and children to have the best therapies so when they do survive they can be the best they can be and get the help for them to have a good quality of life and overcome as much as they can.
Some days I feel so helpless in this war on this monster...
When Cecilia was born in 1999, they had little they could do with the number one killer to these babies - pulmonary hypertension. A few years later there were more drugs out there that could be given to these babes to get them to the point of recovering and those lungs to the point that there may be little need for the drugs or none. Some children may still need the medications - some do not. The point is - it is out there now to help. We need more, so much more.
It just doesn't seem to be enough out there.
I am not asking for a "cure" - I have seen long enough and researched congenital diaphragmatic hernia long enough to know it is a naturally occurring birth defect. I would like to see the survival rate at 99% - nothing in life is 100%. Next is to have more out there for families and children to have the best therapies so when they do survive they can be the best they can be and get the help for them to have a good quality of life and overcome as much as they can.
Some days I feel so helpless in this war on this monster...
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